Saturday, April 17, 2010

So why am I here?

I have been contemplating blogging about my recent diagnosis with Obsessive Compulsive Disorder for a few weeks now but have held off. What if someone from work sees this? Or a casual acquaintance? What if people don't understand? Ah, the "what ifs" of OCD. I decided that if this blog could help even one person navigate this disorder (you're not alone!), this is a risk worth taking. So here we go. Welcome to my brain.

I plan on writing about how treatment is going and sharing the ups and inevitable downs. If I'm in a good space, I might even be witty.

So how did I come to this diagnosis? Here's my story thus far.

As long as I can remember, I have struggled periodically with anxiety, usually during times of stress or transition. I even saw a psychiatrist for it when I was around 12 or so. As I got older, I became more adept at navigating the episodes and hadn't experienced a major one in the several years before my pregnancy.

Ah, pregnancy. While I had a rough time with some physical issues (horrific morning sickness that lasted all day until month five and swelling that made even the nurses shocked), I felt like the Buddha. I was Zen. My mind was calm. I had never been so much at peace emotionally (certainly the absence of PMS didn't hurt!)

So, while I sometimes had a niggling "what if I end up with postpartum anxiety or depression?" concern, I didn't do anything to prepare myself for the possibility in the weeks leading up to our daughter's birth.

And then our gorgeous Lucy was born. In the first few weeks following her arrival, I remember being surprised by how well I seemed to be navigating everything. I had expected a bunch of crying fits and bouts of the "baby blues", but all in all I felt pretty good. Lucy was an easy baby, I had my husband at home for a few weeks and all was going well.

And then the scary thoughts started. I remember burping Lucy in the middle of the night and thinking "what if I accidentally hit her too hard and really hurt her?" And then more worries surfaced. Everything from bath time to carrying her over a hard surface became inspiration for the horror movies playing in my head. I started obsessing over why I was having these thoughts. Did I want them to come true? Was something really wrong with me? What kind of mother thinks these things?

My wonderful husband, who's also a counselor, tried to reassure me. He promised that everyone has thoughts like these and that I'm a good mom. I wasn't satisfied. I decided to talk to my OB at my six week follow-up appointment.

When I finally screwed up the courage to tell her I had been feeling anxious, she acted surprised and even a little disappointed. She didn't ask about my particular symptoms and I was too afraid to tell her about my thoughts given her reaction. She just asked if I was able to take care of myself and the baby (check) and if I had episodes of uncontrollable crying (not at this point). She prescribed 50 mg of Zoloft and sent me on my way.

I decided against taking it and tried to put the thoughts out of my mind for the next few weeks. My husband and I went out to dinner when Lucy was around 2 months old and I was completely distracted the entire time. As much as I tried to focus on our conversation, my mind kept drifting back to the scary thoughts. We got home from dinner, put the baby to bed and my mind kept racing. I literally did not sleep that night.

The next day I decided to start my Zoloft prescription, but my doctor hadn't told me to start on a lower dose or that initially Zoloft can make anxiety worse. I had a full-out panic attack lasting most of the afternoon and the following night. I insisted my husband stay at home from work with me. I couldn't imagine being alone with the baby.

At this point, I knew I needed help and needed it now. I had all kinds of fears: I would be determined to be crazy. The doctor would find me an unfit mother. My baby would be taken away. But the fact that I saw myself spiraling quickly downward gave me the courage to reach out.

I was seen by a psychiatrist who honed in on my issue within the first few minutes of me explaining my symptoms. He assured me I wasn't crazy (phew!) but told me I was suffering from Obsessive Compulsive Disorder. Huh? I didn't have any of the hand washing or other ritualizing behaviors of someone with OCD, so how could this be my diagnosis? He explained that many people with OCD have obsessional thoughts and internal compulsions (seeking reassurance, rationalizing, etc.). Suddenly, all of my past anxiety episodes snapped into place. YES! I DID obsess! YES! I DID rationalize and seek reassurance to make myself feel better!

Despite the relative seriousness of being diagnosed with such a disorder, I felt tremendous relief and hope that we could work together to find a solution. That was six weeks ago. I have since had five sessions with a wonderful, wonderful psychologist and we're working on Cognitive Behavioral Therapy, which has been proven to be very effective at treating OCD. I am also gradually increasing my Zoloft dose.

So how's it going so far? While it can sometimes feel frustratingly slow, I know I am making progress. I also know my good days will increase and the bad days will seem less scary. I am having more periods of calm. More periods of being able to enjoy my new family without worry.

It will be a hard road, though. The kind of therapy I am engaging in requires the patient to face anxiety and their worst fears head on. When we get into the meat of the treatment, I know there will be some scary and difficult moments. But I'm ready for it! And I will share those moments here.

Postpartum OCD Fact of the Week: Up to 90% of new parents experience intrusive thoughts about their new baby. It's time to consider help when the thoughts cause significant anxiety and/or affect your day to day life. There's great help out there! Don't suffer needlessly.

9 comments:

  1. Thanks for sharing your story. I am sure a ton of women can relate and appreciate your openness.

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  2. It's very brave of you to share this.. and I just wanted to commend you for your courage to put this out there and share your struggles (and successes!) with the internet world.

    Journaling like this can, in and of itself, be therapeutic and can certainly help others who might be feeling the same things!

    Best of luck to you on your journey to manage your way through this!

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  3. Thank you for sharing your story! Good luck to you.

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  4. I'm an adoptive mom of a 5 month old daughter who also suffers from PPD (yep, adoptive parents can get PPD too, even thought we don't have pregnancy hormones!) and OCD. I'm getting some relief with journaling and happy pills.

    My symptoms really started getting out of control after we had a second failed adoption and I started obsessing over someone taking away my daughter or something happening to her. I obsess over her sleep (we have a movement monitor, but I still check on her probably 4-5 times a night, down from 12-15 when I was first diagnosed), car accidents (to the point where I have to really push myself to get out of the house), someone stealing her (we haven't been out on a date at all since she was born, b/c I'm so afraid someone will "steal" her if she's not with me every second), among many other anxieties.

    I applaud you for speaking out -- and I would love to chat if you're ever interested or need an ear!

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  5. Your story sounds so similar to mine! I especially loved this part:
    "Huh? I didn't have any of the hand washing or other ritualizing behaviors of someone with OCD, so how could this be my diagnosis?"

    I had the same reaction!

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  6. Thanks for sharing this it I look forward to following your journey with you.

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  7. I found your blog through the bump. I wanted to let you know that my SIL treats patients (although mostly children) with the same type of therapy you are doing. She has a 90% success rate, so I'm sure you will be able to overcome your OCD. Good luck!

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  8. Wow, thank you so much for sharing your story with us. I accidently found it today hitting the wrong board, but I think it was meant robe since ibsyaryed lexapro last for similar issues.

    Thank you

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  9. I am going through my own battle with post partum OCD and anxiety, thank you for being open and honest. It is exactly what I am experiencing!! I have reached out for help, started meds, and begin therapy next week. It has been such a battle but I know with love and support brighter days are ahead! Thank you for your courage it has given me hope!

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